Jan 13, 2013
Serious heart issues
Where again to start??
Things havent got mych better
A check up in dec lead us to a week stay
Life long meds
And a babes heart not working right
Of course poor Soyyer has 5 heart issues not just one
He has hyperteophic cardiomyapthia
Taxhycardia (his lil heart goes up to 283 bom)
Arythmia (irregular beat
Leaky left valve
And electrical shocks in wronmplaces
M wrong times
Its so surreal
We travel 4 hrs south to the specialist hospital every 2 wks
And have to spend the night at s hotel
He gets a echo ecg n a 24 hr holter everytime
We dont and wont know thw futire outcome until we get therei miss you all 
Subscribe to:
Post Comments (Atom)
You guys are in our prayers.
ReplyDeleteKeeping you guys in my thoughts and prayers. <3
ReplyDeleteI haven't checked in here in so long....friends of mine had a little boy with HCM, born at 31 weeks. He had open heart surgery at 1yr, at sick kids, and he turned 5 yrs old in December. He is in Senior Kindergarten, great swimmer, loves gymnastics....hang in there
ReplyDelete