Well i got a call yesterday from genetics and we have a "answer"
Lil man has Leopard Syndrome
Onoly about 250 reported cases worldwide!
hope to know more exacts on april 1 as we have another genetics appointment and another sedation echo and ecg
keep us in your thoughts :D
Just found your blog. Thinking of you. Give us an update on little man when you get a chance. xoxo
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